The History of North of Boston Cancer Resource
Compiled by Dina Crawford, former Steering Committee member and Board President
North of Boston Cancer Resource (NBCR) began with an idea, a small group of people who believed in it, and a shared desire to make the cancer journey a little less difficult for people in our community.
The Beginning
In August 2016, a group of gifted healers, healthcare professionals, and cancer community leaders gathered at Roots to Wings in Newbury. The group was convened by Carol Gamble and Arleen Damon, who had identified a need through their work as yoga teachers and their involvement with people affected by cancer: there was no easy way for people with cancer, their families, or their healthcare providers to find the many supportive services, programs, and practitioners of healing therapies available in the local community.
The group came together with a common purpose—to explore how people with cancer could be connected with healing therapies, services, and resources that would help them navigate the distress of a cancer diagnosis, promote healing, and enrich their well-being through cancer and beyond.
The original vision was to create a directory of local resources but, before long, the idea was about more than creating a list. The founders started to envision a network that would help people with cancer access physical, emotional, and spiritual support throughout treatment and survivorship.
The people who participated in those early conversations brought a breadth of experience in cancer care, healthcare, wellness, healing, and community support. Among those who attended the early meetings were,
Arleen Damon — Yoga teacher Roots to Wings, Cancer Support Group
Carol Gamble — Yoga teacher, Graceful Path Yoga, Roots to Wings
Dina Crawford — Reiki Practitioner, Patrick Dempsey Center Voluntee
Rose Russo — Pathways Graphic Design, Yoga teacher at Yoga Center
Ilene Harnch-Grady — Health & Wellness Director, YWCA, Encore
Laura Rossi, RN ---Director of the Anna Jaques Hospital Cancer Center
Joanne Rowley, RN — Yoga Teacher, Clinical Nurse Specialist
Rae Kukene — Riversong Plastic Surgery, Amesbury Holiday Program
Linda Kuhne — Director of Rehabilitation/Pain Management, Anna Jaques Hospital
Denise DeSimone — Author, Motivational Speaker, Wellness Coach
Susan Smith — LISW, Anna Jaques Hospital Cancer Support Group
Patty Melon, Sherri Ziomek, and Dana Fagerquist from the Tough Warrior Princesses
Five members of the original group—Carol Gamble, Arleen Damon, Rose Russo, Ilene Harnch-Grady, and Dina Crawford—formed the first Steering Committee and began the work of turning the idea into an organization.
Greater Newburyport Cancer Resource
Initially, the organization was called Greater Newburyport Cancer Resource (GNCR).
By January 2017, the Steering Committee had met eight times and had already taken several important steps.
The early mission of GNCR was:
To provide a resource directory of healing therapies and programs available in the greater Newburyport community in support of cancer patients, their families and their providers.
Its vision was:
Enhanced well-being and survivorship for people with cancer in our community through access to a network of providers and programs that offer physical, emotional and spiritual healing and support throughout the course of their treatment and beyond.
The geographic scope of the proposed directory was to include 19 towns in northeastern Massachusetts and southern New Hampshire, approximately reflecting the service area of Anna Jaques Hospital.
The committee began identifying the types of therapies and programs that could be included in the directory, with an emphasis on approaches that were evidence-based and recognized by national medical and cancer organizations as having value as an adjunct to conventional cancer treatment.
The group also began laying the practical foundation for what would become eventually become NBCR. Plans were developed for a printed brochure and website, fundraising, outreach to the medical community, and communication with practitioners who might be included in the directory. An application for practitioners to request inclusion was created, along with a script for speaking with providers. Rose Russo designed the organization's first logo.
The Steering Committee also began building relationships that would prove important to the organization's future. As a former Lab Director at Anna Jaques Hospital, Carol Gamble had strong connections there. Meetings with Laura Rossi, Director of the Anna Jaques Hospital Cancer Center, Kelley Sullivan, Community Benefits, and Sarah Gnerre, Vice President of Development, established an important connection between the emerging community resource and the local medical community.
Members of the committee also attended the “Celebrating Survival” luncheon sponsored by Anna Jaques Hospital, The Greater Newburyport Chamber of Commerce and the Institution for savings, introducing GNCR to a broader audience.
The organization was building momentum, but it needed funding to move from an idea to a functioning community resource. The committee set an initial fundraising goal of $10,000 to create and promote the brochure and website.
The urgency was captured in a January 2017 letter to friends and supporters:
“Time is of the essence. As we know, people need help now.”
Testing the Vision
By the middle of 2017, the five members of the Steering Committee had invested months of time in developing the idea. But they had an important question to answer:
Was there really a need for this kind of resource, would the broader community support it and would practitioners in the community participate?
Rather than assuming the answer, the Steering Committee decided to find out.
They invited people from the surrounding communities to a meeting at Roots to Wings Yoga Center to introduce the developing project and explore interest in creating a resource that would connect people affected by cancer with complementary therapies, supportive programs, and other resources.
More than 40 people attended.
Among them were practitioners of complementary therapies, leaders of cancer support nonprofits, and physicians. The size and diversity of the gathering gave the Steering Committee an important indication that the idea they had been nurturing was resonating beyond their original circle.
But one response in particular would change the trajectory of the organization.
Dr. Rebecca Yang of Lahey Comprehensive Breast Health Center was at that meeting. She had been invited by her patient, Arleen Damon, one of the Steering Committee members.
After hearing about what the group was trying to create, Dr. Yang told Arleen,
“We need this.”
Dr. Yang didn't stop with words of encouragement. She went on to help make the vision possible.
Through her support, the Comprehensive Breast Health Center at Lahey Hospital & Medical Center contributed $5,000 to the project. Soon after, Anna Jaques Cancer Center, in collaboration with Beth Israel Deaconess Medical Center, contributed another $5,000.
The original $10,000 fundraising goal had been met through the support of two prominent local cancer-care institutions.
For the Steering Committee, this was a pivotal moment.
The need they perceived had been validated and local hospitals were investing in making the resource a reality.
In addition, the support of Dr. Yang, whose practice was outside the greater Newburyport area, necessitated a name change for the organization and an expansion of the service area. Greater Newburyport Cancer Resource became North of Boston Cancer Resource and the service area was expanded to the communities north of Boston in Massachusetts, New Hampshire and Southern Maine.
From Idea to Community Resource
By October 2017, additional community support had brought total contributions to $16,500, including a $5,000 corporate donation from Montbleau & Associates, Inc. and a $1,500 foundation gift from the Swasey Foundation. These early gifts helped fund the development, promotion, updating, and maintenance of the website.
Over the next several months the team worked diligently on creating the directory.
They scoured the internet, talked to people in the community, made phone calls, verified information and organized the services and resources into several categories.
They included support groups, local cancer support organizations and programs, as well as books and the websites of national organizations with cancer support options.
The resource guide was becoming far more than a simple directory. The Steering Committee wanted people to be able to find competent, qualified, and compassionate practitioners who understood the unique needs of people affected by cancer.
The range of modalities being considered was extensive, including acupuncture, aromatherapy, art therapy, exercise, oncology massage, manual lymph drainage, meditation, guided imagery, nutrition, Reiki, relaxation techniques, spiritual support, yoga and yoga therapy, and many others.
Local practitioners known to the group were invited to apply to be included in the directory. A thorough vetting process was implemented with a review of credentials, experience and references.
The Steering Committee continued working closely with Anna Jaques Cancer Center and the Lahey Comprehensive Breast Care Center to ensure that the resource guide included programs and therapies that were evidence-informed and recognized by national cancer centers as potentially beneficial alongside conventional cancer treatment.
This information was compiled and organized with contact information and links. In the meantime, Rose Russo was working with Jessamyn Anderson of, what was then, Dingo Creative, to design and build the website.
The Launch
In February 2018, the new North of Boston Cancer Resource website went live. It was an exciting milestone—the idea that had begun with a small group gathered at Roots to Wings was now becoming a real resource that people with cancer and their families could access online.
The website brought together information about cancer support organizations, programs, resources, and practitioners offering complementary and supportive therapies. It represented the first tangible expression of the vision the Steering Committee had been working toward since that first gathering in 2016: making it easier for people with cancer to find resources that could support them physically, emotionally, and spiritually throughout their cancer experience.
At this time, the NBCR Steering Committee took their show on the road. They prepared a presentation to share with those who had supported their efforts and those who could share the information with others. The team presented to the Cancer Committees at the Lahey Hospital and Anna Jaques as well as other community organizations such as The Rotary Club and The Exchange Club and the Chamber of Commerce.
To celebrate the launch and publicize it in a bigger way, a special community gathering was held on June 6, 2018. The invitation list reflected the growing network that had formed around the project. Hospital representatives from Anna Jaques, Lahey, Beth Israel, and MGH were invited, along with physicians, nurses, social workers, volunteers, and others involved in cancer care. Local cancer support organizations and community partners were invited as well, including Cancer Strong, Greater Newburyport Ovarian Cancer Awareness, Ironstone Farm, Lucy’s Love Bus, and Tough Warrior Princesses. The celebration also brought together donors and early supporters as well as business and community leaders.
Left to right, Ilene Harnch-Grady, Dina Crawford, Robin Bavaro, Carol Gamble, Rose Russo, Arleen Damon